Trigeminal neuralgia (TN) is a condition characterized by sudden, severe, stabbing pain in the face, caused by the compression of the trigeminal nerve by an artery or vein. The Trigeminal Neuralgia Association (TNA), led by CEO Aneeta Prem, has received a £25,000 grant from the Postcode Lottery to raise awareness about this “hidden disability.” Aneeta herself suffers from TN and was misdiagnosed for seven years, undergoing unnecessary procedures such as the removal of her wisdom tooth. TN is often referred to as the “suicide disease” due to the immense pain it causes, leading some individuals to consider ending their lives. Aneeta hopes that the grant will contribute to finding a cure for TN and increasing awareness of the disease.
Aneeta’s personal experience with TN and her subsequent diagnosis motivated her to establish the “three finger campaign” on October 7, which aims to bring attention to the disease for an entire month. TN is often misdiagnosed as severe toothache, contributing to the notion of it being a hidden disability. Aneeta wants to ensure that individuals with TN are aware of available support options and resources. The elusive nature of the disease often leads to individuals suffering for extended periods of time before receiving a proper diagnosis and treatment. Aneeta hopes that the funds from the grant will not only contribute to finding a long-term cure, but also increase awareness of TN to prevent unnecessary suffering.
The £25,000 grant from the Postcode Lottery is a significant boost for the Trigeminal Neuralgia Association and its efforts to raise awareness of TN. Aneeta, who was awarded an MBE for her work on women’s rights, is determined to use this funding opportunity to make a difference in the lives of those affected by the disease. TN has no cure, and some individuals have had to undergo extreme measures such as being put into a coma for temporary relief from the unbearable pain. With the grant, Aneeta hopes to make progress towards finding a cure and improving the quality of life for individuals with TN. By increasing awareness, the Trigeminal Neuralgia Association aims to ensure that those suffering from TN receive an accurate diagnosis and appropriate support in a timely manner.
In sum, Trigeminal Neuralgia is a condition characterized by severe facial pain caused by the compression of the trigeminal nerve. Aneeta Prem, CEO of the Trigeminal Neuralgia Association and a sufferer of the disease herself, has launched a campaign to raise awareness and support for individuals with TN. The recent £25,000 grant from the Postcode Lottery will aid in raising awareness and finding a long-term cure for this hidden disability. Aneeta’s personal experience and passion for helping others has driven her to make a difference in the lives of those affected by TN, and she hopes that the funds will facilitate progress towards a future without the debilitating pain associated with the disease.
